Tag Archives: FASD

Raising awareness #FASD

You may have noticed on social media that today (September 9th) is International FASD awareness day – and in fact the whole of September is FASD awareness month! FASD (which stands for fetal alcohol spectrum disorder) is now recognised as affecting more people than autism or ADHD. FASD is a group of lifelong conditions affecting people in different ways physically, emotionally and behaviourally, and because not everyone will be affected in the same way it is not always diagnosed early on. As a developmental condition there is no cure, but early diagnosis is important in order to be able to put support systems in place to help families cope and thrive.

Because some of the effects of alcohol on the developing foetus relate to later difficulties in processing information or in regulating emotions (for instance) some children with FASD will show patterns of difficult and challenging behaviour, sometimes using violence in the home and towards their parents and carers. Understanding more about FASD can help with understanding what is going on behind child to parent violence, and can be an important start in putting in place the networks and systems that are so vital for families in this situation.

The National Organisation for FASD is a good place to start (in the UK) if you want to develop your own awareness and understanding. There is a very helpful Preferred UK Language Guide on their website. Sandra Butcher, their CEO has been busy tweeting all day and you will find a lot of links to other resources from her, and news of anticipated policy changes.

If you’re on social media and you want to keep in touch with the latest research findings, policy and training, these are some people that I have found helpful to follow:

There are many more, I’m sure you’ll find the people who you can connect to best!

FASD is just one of the many different issues which can lead to families experiencing CPV. Its good to see that this condition is closer to getting the attention it deserves.

See the Government website for Guidance published September 9th on health needs assessment of families affected by Fetal alcohol spectrum disorder.

To download factsheets about FASD produced by FASD Hub Scotland click here.

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International FASD Awareness

September 9th was International FASD Awareness Day. Foetal Alcohol Spectrum Disorder, the most common non-genetic cause of learning disability in the UK, is thought to affect 2% of the UK and US populations, though some people claim that is a huge under-estimate, with up to 5% affected. Within certain communities – care experienced children – it is significantly higher, with perhaps a third of adoptive children receiving a diagnosis. That is a challenge in itself, with only relatively recent wider recognition of this disorder, above and beyond the facial characteristics which only show on a small proportion of children affected. Continue reading

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One size doesn’t fit all

Some time ago I had a conversation with a parent of a child with an ASD diagnosis about the use of public care for both respite and therapeutic purposes, particularly when there has been violent and abusive behaviour towards parents present. Since then we have corresponded from time to time as media interest or legislative procedures have bobbed up and down.

The issue which initially brought us together was with regard to the need for specific understanding of the different and differing needs of neurologically atypical children and young people. We were concerned about a “One size fits all” approach in many aspects of support for families, and a shortage of specific training in neurological conditions for many engaging with families regularly in their work. We acknowledged that some conditions (such as PDA) had only recently been identified, but that other diagnoses were well known and well documented, so that there seemed little excuse for ignorance about the effects on mood and mental health, learning and employment opportunities, behaviour and offending. This parent had undertaken significant research into the diagnosis, communication with family, documentation and support for children and young people with ASD, and found that many went undiagnosed or their specific needs unrecognised, despite their over-representation within care and the juvenile justice system. Continue reading

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