Once again the Victoria Derbyshire programme stepped up to the mark this week, with a segment devoted to the plight of families of children with autism, particularly Pathological Demand Avoidance (PDA). The programme is available for the next month only, but the film included, “I feel really bad when I hurt my mum”, from Noel Phillips, will be available for longer.
The programme explored problems parents have in obtaining a diagnosis of autism / PDA and then the appalling lack of support following a diagnosis. As a result of a lack of help for families, parents may be coping alone with extreme levels of violence on a daily basis, as children ‘meltdown’ when dealing with anxiety of stress. Children may be excluded from school because of their behaviour, further increasing their vulnerability. We are warned that without timely assistance, many young people are on a trajectory to prison. Continue reading
Filed under Discussion, TV
Some time ago I had a conversation with a parent of a child with an ASD diagnosis about the use of public care for both respite and therapeutic purposes, particularly when there has been violent and abusive behaviour towards parents present. Since then we have corresponded from time to time as media interest or legislative procedures have bobbed up and down.
The issue which initially brought us together was with regard to the need for specific understanding of the different and differing needs of neurologically atypical children and young people. We were concerned about a “One size fits all” approach in many aspects of support for families, and a shortage of specific training in neurological conditions for many engaging with families regularly in their work. We acknowledged that some conditions (such as PDA) had only recently been identified, but that other diagnoses were well known and well documented, so that there seemed little excuse for ignorance about the effects on mood and mental health, learning and employment opportunities, behaviour and offending. This parent had undertaken significant research into the diagnosis, communication with family, documentation and support for children and young people with ASD, and found that many went undiagnosed or their specific needs unrecognised, despite their over-representation within care and the juvenile justice system. Continue reading
There has been rather an emphasis on the impact of domestic violence or trauma on here recently, and so I thought it was time to redress the balance and consider the presentation of violence and abuse to parents from children on the Autistic Spectrum. Today I bring you a guest post from Jane Sherwin, who I first met on twitter writing about life with her daughter, Molly. Jane has become something of an expert on the condition, campaigning, blogging, and publishing a book in 2015. Continue reading