Tag Archives: NOFAS-UK

The experiences of families caring for children with FASD: “no one came to help”

It is suggested that the prevalence of foetal alcohol spectrum disorders (FASD) is greater than autism, and yet there remains significantly less understanding of this issue, information for families and practitioners, and support for those impacted by the condition. In 2023, Waite and Burd reported that “At an estimated prevalence of up to five percent in the general population, fetal alcohol spectrum disorders (FASD) are the most common neurodevelopmental disorder”.

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International FASD Awareness

September 9th was International FASD Awareness Day. Foetal Alcohol Spectrum Disorder, the most common non-genetic cause of learning disability in the UK, is thought to affect 2% of the UK and US populations, though some people claim that is a huge under-estimate, with up to 5% affected. Within certain communities – care experienced children – it is significantly higher, with perhaps a third of adoptive children receiving a diagnosis. That is a challenge in itself, with only relatively recent wider recognition of this disorder, above and beyond the facial characteristics which only show on a small proportion of children affected. Continue reading

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