For the last few years it seems, in amongst all my other CPV posts, I have thought, discussed, and posted a lot about the experiences of adoptive parents experiencing violence or abuse from their children, but this year feels already like there’s going to be a lot of attention – rightly so – given to those struggling with the behaviour of their children with learning difficulties or disabilities. With the treatment of children and young people in assessment units very much in the news, expect to hear even more! For many, the conflation of this type of behaviour – identified as a response to anxiety and stress in the face of unreasonable (and often very reasonable) expectations – with deliberate, manipulative acts of violence and control from some neuro-typical children does not sit easily. Indeed, Yvonne Newbold has coined the term Violent Challenging Behaviour to make this distinction.
Tag Archives: Yvonne Newbold
You may have been following the discussion opened up by Dr Wendy Thorley and Al Coates, following their survey of adoptive and foster families at the end of 2016 (here, here, here and here), and then the enlarged questionnaire to all families experiencing violence and aggression from their children of 2018. If so, you will already be aware of the way in which the responses brought to the fore a number of difficulties with the way in which CPVA is understood and conceptualised; particularly around intent, and children who have either a recognised mental health diagnosis, learning difficulty, or have experienced trauma in early childhood. Two documents are now available, comprising a full and detailed analysis of the recent survey responses, and an extended summary of the main discussion points and recommendations. The first is available through Amazon, the second as a free download from Academia. Continue reading
Another great programme from the BBC this week, available until November 28th. Victoria Derbyshire looked at the violence experienced by families of severely autistic children, and the difficulties for parents in obtaining support. (You can also read some of the stories here)
As well as introductions, and emails and texts from parents throughout the programme, there are two main sections to the item: a film from Noel Phillips (from 16.40 – 33.40), and interviews and discussion with three families and an MP (from 1.20.10 to 1.31.30). The programme ends with further calls from three families affected at 1.50.24. Some commentary is offered from the National Autistic Society, and the Local Government Association. You can view the whole of Noel Phillips’ film here. Continue reading
Once upon a time, when I didn’t know so much about “parent abuse” it seemed a little exciting to be at the forefront of a new phenomenon. It felt important to speak clearly and categorically, for clarity, and the avoidance of misunderstanding – which was commonplace. “Parent abuse? You mean abuse BY parents? No? You must mean older people then?” Now it seems that the more I learn, the less certain I am about anything – other than the fact that many, many more parents than we would like to think about are struggling daily with much, much more than anyone should ever have to face within their family. Continue reading
Last week I brought you the reflections of Dr Girish Vaidya, who had attended the Violent Challenging Behaviour conference, organised by Yvonne Newbold. The post has attracted some interesting discussion. This week Yvonne has kindly allowed me to repost her own reflections and review of the conference.
Yvonne begins by recounting the hopes of those attending, and ends with her own dream that this, by breaking the silence, will be just the start. “Part of achieving this level of widespread acceptance must include training for all frontline professionals about the issue, and why it happens and how they can help. Ideally, I’d like to see a future where professionals and parents work together in a spirit collaborative respect to find individual support and solutions that work for each child.” There are some salutary lessons for professionals in her post. Please do read it and understand that this is the real experience of many parents, while we always acknowledge that there are also informed, compassionate practitioners already out there who do truly “get it”.
What did parents want? Continue reading
Al Coates and Dr Wendy Thorley’s 3 reports (the last of which is linked here) into an online research project provided fascinating reading and prompted me to present the subject in a CPD seminar for fellow psychiatrists in Sheffield’s Child and Adolescent Mental Health Service (CAMHS). I was particularly keen to share the findings of the reports, my fellow professionals’ experience of this issue and how they managed to address it.
It was heartening to hear that all my colleagues were aware of the issue. When I invited them to think about the impact on the families experiencing, their guesswork was entirely in line with the findings from Al Coates and Dr Thorley’s investigation. What this meant was that once seized of the behaviour as a problem, professionals were able to consider its consequences to the children, families and wider society.
There were also some examples that colleagues offered. One Learning Disability CAMHS Consultant recalled how she was horrified when confronted with a suggestion from social services that a child – who had earlier required 5 people to restrain him – had been advised to be returned home to his frail mother. Quite a few chipped with their experience of Sheffield Children’s Social Services and expressed their pleasant surprise at the speed of response and collaborative nature of working. It was also acknowledged, much in line with what Mary Aspinall – Miles said at a recent conference, that “parents should consider carefully before calling the police”.
So, what should parents (and professionals) do when dealing with a difficult subject like Child on Parent Violence?
My fellow psychiatrists were keen that professionals and parents work out a ‘pre-emptive emergency plan’ so that parents are not left in a dilemma about what they should do. A couple of colleagues were passionate about treating CPV on the same level of child abuse. They were also aware of the Sheffield Domestic Abuse Coordination Team’s MARAC (Multi Agency Risk Assessment Conference). Some suggested that parents should be asked about their ability to cope vs. their ability to manage their life.
Reassuringly, there was a near universal desire to have a ‘rating scale’ on the lines of various risk rating scales that professionals use, to have a common language about CPV. (I am not aware if there is any such scale and if there is, would be keen to know about it). If there isn’t a scale, my colleagues are keen to work with anyone to help develop one.
Writing this, I am reminded of an incident many years ago when one family’s holiday came in for professional scrutiny. The child had been inflicting severe violence on his parents which had destroyed many a family holiday for the rest of the family. Parents decided that they wanted to do something which didn’t wreck their other children’s holiday. They planned to take separate holidays – father with the other children and mother with the lad. They would swap the following year. It was deemed to be a demonstration of family pathology that they didn’t manage to have a family holiday without a fight. I felt that was being a bit too harsh since the family were trying to find a way out of a very challenging situation not fully appreciated by professionals. What do you think? Would you agree with Hannah Meadows’ assertion that self-care is an intelligent response to dealing with long term stress? Or would you rather that the family learn to live with the CPV on holiday?
Feedback from the CPD seminar suggested that this is just the beginning of our journey. Professionals want to know more, need to know more so that they can support more. Everyone agreed that it was a less discussed issue in clinical discussions and many emphasised that they would be on the lookout for CPV in their clinical practice in the future.
Let us continue the conversation…………………………..
If you are keen to collaborate on scientifically researching this challenge, we – as an organisation and I as a Clinical Director – would be keen to work with you.
This is a post I have had in mind for a while, and which has been changing shape faster than I can write. As a result, this is going to be part 1, and I will continue the discussion over the next weeks and months. It really develops two themes and questions: what are we actually talking about when we present training or speak about child to parent violence (CPV); and where are the edges of the definition – what’s included, who’s included, and what and who’s not? It is something we need to address. I am often asked for examples to illustrate a discussion or seminar. It is lazy to simply assume that people understand the concept just because we have become familiar with it. “The outside world find it hard to imagine. As a mother you don’t broadcast it to the outside world because its not something you’re particularly proud of.” (Rosie Noble) But as more and more people start to speak out and to use the phrase “child to parent violence” it inevitably stretches a bit at the edges.
Many years ago now – by CPV standards – Eddie Gallagher gave a handy list of the types of family situation that might be affected (in his experience) by child to parent violence. Since then the list has grown, and it inevitably includes examples that make us a bit squeamish in including them under an official definition: severely disabled children for instance, or those acting in self defence. I have sometimes pondered how parents themselves feel about including themselves in a CPV definition. Indeed, I have asked parents of children with ASD whether they feel it is appropriate to their situation. Is that how they experience the situation? Do they feel they need to protect their child by rejecting the definition? Are the types of help currently available completely inappropriate to their situation and so it does not seem to include them? I meet parents of children with a learning disability who describe persistent and escalating levels of violence and abuse, that in many ways matches the experience of families with adopted children, or families who have experienced domestic violence, or with mental ill health. And of course in each situation there may be layer upon layer to consider. There is rarely one clear cause or trigger, and for each family it will look and feel slightly different.
Is it taboo to admit your child with disabilities hits or bites you? On Woman’s Hour, on February 21st, Jane Garvey introduced a segment about caring for a child with disabilities. You can hear the programme here, and the discussion lasts from the start to 25 minutes in. There are interviews with Nikita, parent of a five year old child, Nayan, with microcephaly, who shows tremendous resilience in the face of regular tantrums and lashing out which comes from frustration; with Rosie Noble, Family Support Manager at Contact a Family, who offers reassurance that things can get better; and with Yvonne Newbold, mother of Toby, who has written extensively about caring for a child with disability. Yvonne has since blogged about the experience of appearing on the programme, and about her decision to speak out. I highly recommend her blog both for the honesty of the encounter, and for information about Yvonne’s wider campaigning to improve support for families experiencing long term, significant levels of violence from their learning disabled children. I’m not going to repeat the details here. If you are interested in knowing more about Yvonne’s experience then please do check out her website. She has organised a groundbreaking conference for the coming weekend, following her Woman’s Hour appearance, and I hope to post more information about her campaigning in the coming weeks.
For what it’s worth, I don’t think Nikita’s situation would be included by many people within a CPV definition. That is not to diminish the level of violence she and her husband face – and sadly may continue to experience, but to question the level of control or intent involved in the hitting and lashing out. But how will we feel as Nayan becomes older, bigger and stronger? What about Yvonne and Toby – how is their situation different? Is it different? The issue of intent is one I will return to in later posts, as it seems to be a central part of the conversation, and yet raises more questions than it answers.
If that’s not enough questions, I want to conclude by drawing some thoughts together and throwing a final one out there for discussion.
When we discuss child to parent violence we are not talking about the odd push or shove, about stroppy teenagers, or about an argument we once had that got out of hand. The phrase is used to describe a pattern of persistent and often escalating violence and abuse over perhaps years, from a child or young person towards their parent or carer. The routes to CPV are many and varied, and frequently overlapping. Each family situation is unique, and yet there are many commonalities, not least in the actual day to day experience and damage – physical and emotional that is done. Nikita describes the pain and hope of living with a disabled child. Yvonne has years of experience and has taken a decision to break the silence, to encourage others to speak out, and to campaign for better support. These are just two examples of what CPV might look and feel like.
So my question(s): Does that help your understanding or does it complicate it? And if you have a disabled child yourself, how do you feel about being included within the definition of child to parent violence? As always, please do join in the conversation!
May 3rd 2017: I’m adding on a bit here rather than starting a new post, because I think it furthers these particular thoughts.
Yvonne Newbold has continued to add to her own website over the last weeks, and this includes a page about dealing with violent and challenging behaviour from children and young people with neuro-disabilities. I think it is significant that Yvonne chooses to use this phrase – VCB rather than CPV – in this situation.