Another great programme from the BBC this week, available until November 28th. Victoria Derbyshire looked at the violence experienced by families of severely autistic children, and the difficulties for parents in obtaining support. (You can also read some of the stories here)
As well as introductions, and emails and texts from parents throughout the programme, there are two main sections to the item: a film from Noel Phillips (from 16.40 – 33.40), and interviews and discussion with three families and an MP (from 1.20.10 to 1.31.30). The programme ends with further calls from three families affected at 1.50.24. Some commentary is offered from the National Autistic Society, and the Local Government Association. You can view the whole of Noel Phillips’ film here. Continue reading
Filed under Discussion, TV
I am publishing this twitter thread from September 10th, with permission from Ian, who tweets as @DiaryAutism.
I think it adds something to the recent musings about the intent issue, and about the different issues for families where there is an autism diagnosis (here and here for instance); and leaves absolutely no room for any doubt about how it feels, for this person, to be a parent in that situation.
The most powerful emotion I have ever felt is the love for and desire to protect my children
It’s not that I’d take a bullet for them. It’s that I’d run through a brick wall to take a bullet for them Continue reading
This headline and the accompanying piece in the Family section of the Guardian last Saturday could not fail to shock those who came across it: a mother describing the terrible physical abuse she experiences at the hands of her teenage son.
“Sarah” has found it almost impossible to admit that she is scared of her son, and yet when she first asked for help was told that it was unlikely she would get any – because he was loved and not in any danger. This reflects the prevailing story: that in a culture that separates children’s and adults’ needs and services, and focuses on the rescuing of children from danger, we fail to recognise the centrality of relationships in family lives, whether in their fragility of care or their strength to bring healing. Feeling undermined by professionals as much as by strangers and increasingly isolated at a time when their need for support on every level increases, the family is now offered 2 nights respite care every six weeks. Continue reading